Neurofibromatosis is a dreaded disease, It is the general name for a number of genetic conditions that cause tumours to grow along nerves.Tumours are abnormal tissue growths. In neurofibromatosis, the tumours are usually non-cancerous (benign).

  Symptoms of NF2?

Almost everyone with NF2 develops tumours on the nerves responsible for hearing and balance. These typically cause symptoms such as:

gradual hearing loss, that usually gets worse over time

ringing or buzzing in the ears (tinnitus)

balance problems, particularly when moving in the dark or walking on uneven ground

Tumours can also develop inside the brain or spinal cord, or the nerves to the arms and legs.

  What is the cause?

NF2 is caused by a genetic mutation, which is a permanent change in the DNA sequence that makes up a gene. As a result, the growth of nerve tissue isn't properly controlled.
In half of all cases of NF2, the genetic mutation is passed from a parent to their child. In other cases, the genetic mutation appears to develop spontaneously (sporadic mutation).

  How is it treated?

Unfortunately there's currently no cure for NF2.
Treatment involves regular monitoring and treating any problems as they occur.
Surgery can be used to remove most tumours, although it carries a risk of causing problems, such as complete deafness or facial weakness. Therefore, the risks and potential benefits need to be carefully considered before treatment.
Most people with NF2 eventually develop significant hearing loss and often benefit from learning to lip read or using a hearing aid. Special implants can sometimes be inserted to improve a person's hearing.
NF2 tends to get worse over time, although the speed at which this happens can vary considerably. However, most people with NF2 eventually lose their hearing completely, and some people require a wheelchair or other type of mobility device.
Tumours developing inside the brain and spinal cord can place a strain on the body and shorten life expectancy.

  Vipin's case...

Tumors in his brain & spine developed & were (timely) diagnosed in Sept 2008 itself, He was able to drive a car until Jan 2009 & been to office till April 2010, Unfortunately, surgery was not considered by him/near ones that time, which would have not let his condition to be this wretched.
Trying Ayurvedic & later homeopathic medicines made his condition bad & on top of it that alternate medicine from Dr. at Dharamshala, Himachal Pradesh made his condition further bad & later injections & IV Fluids based on 'Toxin Therapy' is an experimental cancer therapy , not for NF2, besides it has several side effects which were grounds for its ban worldwide, everything written in Toxin therapy study paper (Based on this was administered Wrong treatment) which caused me to go on Ventilator support. which was referred by a local Dr. Sadly that part nobody read or got any specialized Dr.'s consent) this caused him to go in coma on ventilator support for about a month. Later 2 Surgeries (in July & Nov 2010) at AIIMS have saved his life but his life is not livable as he is not able to hear completely, can't walk, stammer while speaking – cant understand most times – what he says.